Friday, April 20, 2012

Feeling Tougher Than Ever

Hey there everyone! I wanted to give everyone an update from surgery No. 11 on April 9. It by far was the toughest thing I’ve ever done. It was an 11 hour surgery called the DIEP flap – they disconnect my stomach tissue and reattach the blood vessels to my chest to make breasts. It was done by a great surgeon in Atlanta, Dr. Grace Ma, in conjunction with a surgeon out of Houston, Dr. Sean Boutros. Let me tell you, their work is impeccable! Dr. Ma is a breast cancer survivor herself, so I really feel she brings the most compassionate perspective to her craft.

The recovery was the most difficult thing I’ve ever done. I was in the hospital for four days, forced not to move for that entire time. It was painful, itchy, sleepless days/nights. The nurses had to wake me up every hour to make sure the flaps did not fail. I was in so much pain, I couldn’t even focus to watch TV or read. I basically sat there in pain. I couldn’t eat so I kept getting nauseas off the medicine/post anesthesia. When they finally allowed me to sit up on Friday morning, after dry heaving, the nurses said I finally had color. Imagine needing to throw up, but you can’t move to get in the crouch position.

What this horrific stay has taught me is that I will never allow anyone to keep me alive on life support. Just four days of no moving caused body sores and pain – I can’t image what weeks would do at time.

In addition to weathering that tough stay in the hospital, I can add one more thing to me being a bad ass list: one of the flaps had to be left open to monitor it while I was in the hospital. The last thing my surgeon did before she sent me home on Friday was suture up the flap bedside. It was like a mini-surgery – she beta-dined me up, placed the surgical towel over the area she was treating and everything. It was so weird to feel getting sewed up. Thank God for yoga breathing!

I’ve been at my parents since last Friday night – a week now. I’ve been forced to sleep in a recliner. Fortunately, I’ve gone from being in pain every minute of the day to finding comfort at times. I have to get up and walk every two hours – I walk only around the downstairs. I can’t shower by myself, so my mom has to wash my hair for me as they don’t like me lifting my hands above my head. I’m not allowed to hold anything over 5 lbs. until six weeks post-op. My stomach has been cut from one side to the other and has stomach staples all across it. But the best news is they used stomach skin to replace the badly radiated skin on the left side. Modern medicine is just a miracle.

By next Friday, all four drains will have been removed with all the stomach staples and sutures. That will be 19 days post-op and hopefully by then I will be able to start walking upright. Being hunched over all the time has caused a lot of back pain.

My new surgeon said my left implant would have punctured through that thin radiated skin within a year and a half so it was a blessing we did this surgery. I could not be more happy with my choice and the results – even if I had to go through hell to get there. It is absolutely amazing to know that there is an end to this journey in sight. While I will have to have one more small surgery to do final touches to this work in the fall, it is amazing to know I am close to being done. No more surgeries throughout my lifetime to worry about. This tissue is my tissue – no more foreign objects to worry about or replace throughout my lifetime.

Many of you have told me all along how much you admire how tough I am. Well, for the first time, I can say, “Hell yeah!” I do feel tough. This has been the worst thing I’ve ever experienced, but I can tell you I am happy I made the choice and feel tough as nails.

Thanks for keeping up with me throughout this ride. I am incredibly blessed to have all of you thinking about me and praying for me during this journey.

Love,
Marcy

P.S. – and our family dog Brunswick has been quite the caretaker. He’s always staying close by and when he comes up to the recliner to say hello, he is ever so gentle. I’ve never met a more intuitive dog!

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